Disparities in healthcare transition support received by adolescents with special healthcare needs.
J Appl Res Intellect Disabil. 2019 Nov 06;:
Authors: Heron LM, Agarwal R, Greenup J, Maddux M, Attong N, Burke SL
BACKGROUND: Transitioning to adult healthcare systems can be challenging, especially if left unaddressed for adolescents with special healthcare needs (ASHCN), such as those with autism spectrum disorder and attention-deficit/ hyperactivity disorder. While there is evidence of disparities between different demographics regarding general healthcare services, research on healthcare-specific transition planning is lacking. Thus, there is a critical need to continually investigate these disparities.
METHOD: Using nationally representative data from the 2016 National Survey for Children’s Health, several analyses were conducted to examine doctor-patient interactions and discussions about transitioning to adult health care. Accounting for demographic and diagnostic indicators allowed for the assessment of disparities.
RESULTS: Findings revealed significant disparities between age, disability and race relative to various healthcare transition support services.
CONCLUSIONS: Findings provide valuable information that can inform the development of training programmes for healthcare providers, influence policy, modify procedures and interventions and highlight the need for increased advocacy for ASHCN.
PMID: 31694076 [PubMed – as supplied by publisher]